Rare Disease Day

Share this post

Rare Disease Day is observed every year on February 28 (or 29 in leap years) — the rarest day of the year. Rare Disease Day provides an opportunity to recognize individuals who live with rare diseases, work towards equity in healthcare, and access to diagnoses and therapy for people living with rare diseases.

Rare Disease Day is observed every year on February 28 (or 29 in leap years) — the rarest day of the year. Rare Disease Day provides an opportunity to recognize individuals who live with rare diseases, work towards equity in healthcare, and access to diagnoses and therapy for people living with rare diseases. Started in 2008, Rare Disease Day helps create a community for those with rare diseases across the world who deal with several different symptoms and diagnoses. Rare Disease Day is patient-led, but families, caregivers, healthcare professionals, researchers, clinicians, policymakers, industry representatives, and the general public can participate in raising awareness and taking action for those who struggle with rare diseases.

Rare Disease

A disease is considered rare when it affects fewer than 1/2000 people. Those living with a rare disease often face barriers that others do not. The lack of knowledge and information on the disease has the potential to contribute to a delay in diagnosis or even cases of misdiagnosis. This often results in heavy social and financial burdens on patients.

Mesothelioma is diagnosed, on average, in about 3000 Americans per year – qualifying it as a rare disease. Mesothelioma is a disease where cells in the mesothelium become abnormal and divide without order or control. The cancer cells can invade nearby tissues and organs or spread to other areas of the body. Mesothelioma usually affects the pleura, the membrane that surrounds the lungs. This form of the disease is called pleural mesothelioma. The peritoneum can also be affected, which is known as peritoneal mesothelioma. It rarely begins in the pericardium.

2Q==

If you or a loved one has been diagnosed with an asbestos-related disease such as lung cancer or mesothelioma, help starts here. Call our office today or fill out a free case evaluation.